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Press Releases

March 11, 2015
Length Matters: Rett Syndrome May Result from Overexpression of Long Genes
Mutations in the methyl CpG binding protein 2 gene (MECP2) are the cause of the devastating childhood neurological disorder Rett Syndrome. ...
February 3, 2015
Rett Syndrome Research Trust Awards $5.8 Million to Advance the Development of Treatments and Cures for Rett Syndrome and MECP2 Disorders
Today the Rett Syndrome Research Trust (RSRT) announced research investments of $5.8 million awarded in 2014. RSRT’s sole and urgent goal is to ...
January 28, 2014
Momentum Builds in Rett Research as RSRT Awards a Record $7.2 Million in 2013
Continuing to expand the depth and breadth of high-impact research, the Rett Syndrome Research Trust (RSRT) awarded a record $7.2 million to new ...
August 20, 2013
First Pre-Clinical Gene Therapy Study to Reverse Rett Symptoms
The concept behind gene therapy is simple: deliver a healthy gene to compensate for one that is mutated. New research published today in the ...
July 28, 2013
Statins Suppress Rett Syndrome Symptoms in Mice
Statins, a class of cholesterol-lowering drugs found in millions of medicine cabinets, may help treat Rett Syndrome, according to a study ...
June 25, 2013
Rett Syndrome Research Trust Hires Program Director to Focus on Fundraising and Organization Growth
The Rett Syndrome Research Trust (RSRT) is pleased to announce that Tim Freeman, who has nearly 20 years of experience in fundraising, public ...
June 19, 2013
Award-Winning Documentary on Rett Syndrome Holds D.C. Premiere July 9th Panel Discussion with Institute of Medicine President, Leading Rett Scientist, Filmmaker and Disease Advocate
Rett Syndrome, a woman’s disease most women have never heard of, will be the focus of a documentary film screening and panel discussion. The ...
June 16, 2013
The Rett Syndrome Protein Surrenders Some of its Secrets
Discovery of a mutant gene responsible for a disease is a milestone, but for most conditions, it may be only a first step towards a treatment or ...
April 9, 2013
British Partner Joins Board of Global Group Striving to Reverse Rett Syndrome
Trumbull, CT/Manchester, UK — The Rett Syndrome Research Trust (RSRT) has appointed Rachael Bloom to its Board of Trustees. She is a founder ...
February 13, 2013
Treatment for Rett Syndrome Moves a Step Closer as RSRT Commits Record $4.2 million in 2012
The Rett Syndrome Research Trust (RSRT) affirmed its mission to drive innovative science by awarding $4.2 million in 2012. This amount represents ...
October 26, 2012
RSRT Welcomes David Scheer and James Trainor to Advisory Council
The Rett Syndrome Research Trust (RSRT) is very pleased to name David Scheer and James Trainor to our Professional Advisory Council, effective ...
March 18, 2012
Bone Marrow Transplant Arrests Symptoms in Model of Rett Syndrome
A paper published online today in Nature describes the results of using a bone marrow transplant (BMT) to replace faulty immune system cells in ...
November 1, 2011
Rett Syndrome Research Trust Launches Awareness Campaign in Iconic Times Square Location
Horizon Media, A2A Media, Garage Media Join Forces To Create Pro Bono PSA The Rett Syndrome Research Trust is pleased to announce a campaign to ...
September 7, 2011
Rett Syndrome Research Trust Creates MECP2 Consortium
The Rett Syndrome Research Trust (RSRT) announced today the creation of the MECP2 Consortium, a dynamic collaboration between the laboratories of ...
June 29, 2011
A Role for Glia in the Progression of Rett Syndrome
A paper published online today in Nature reveals that glia play a key role in preventing the progression of the most prominent Rett Syndrome ...
June 2, 2011
Adult Brain Requires MeCP2 for Proper Functioning
A paper published online today in Science provides evidence that the Methyl-CpG-Binding Protein 2 (MeCP2) is required throughout life to maintain ...
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